Little Me on Capital Hill

I was asked by the Children's Cause Cancer Advocacy to go to capital hill and speak to Congress. They asked me to share my experience as a childhood cancer survivor to encourage Congress to support the bill HR2109. So I figured.. why not! Liza and I hopped on the Bolt Bus and headed to DC. We attended a reception that evening where some Congressmen/women spoke and a renowned Oncologist. Their stories and information were inspiring. I will post the videos at a later time.

The next morning, Liza and I attended what we thought was going to be a training session before speaking with Congress. At this point, I had no clue what bill I was speaking about, what it did, and why it was important. It didn't take long before I realized that the information they were discussing was completely irrelevant to what I needed to know before speaking to Congress. At the end, I was informed that I would be leading the team when meeting with Rep. Maloney who is the representative for the 14th district in NY. Happens to be where I live. I left in panic with 45 minutes to cross the mall and meet Rep Maloney.  I was in complete panic. We called Liza's mom and had a government 101 crash course in 5 min. What is a constituent? caucus? Bill HR2109? I felt so unprepared, but I knew my story and hoped that was going to be my saving grace. 

We arrived with plenty of time. Paced the Halls. Took some pictures. Gathered my thoughts. We walked in at 1:59 pm. 

I shared my story. She listened for 40 minutes. She agreed to support the Pediatric Cancer Caucus and support bill HR2109. 

We then went to our second meeting and spoke to Rep. Engel. He was not as receptive, but we will follow up and get him to support this caucus.

I learned a lot and saw a whole different side of our government that I had always shyed away from. I will encourage people to get out there and use your voice. If Elle woods can do it, so can we!

Knicks vs Wizardssss

It is a monday night in NYC. The weekend was busy and fun as always. Not sure what I did. Sure it was great. So what do we do on a monday night? Go watch Lacey's friend Shawn Livingston, who plays for the Wizards. It was the Knicks last game of the season. They won. It was fun. We sat in the press box and ate everything that the snack shack had to offer, and we drank beer. Good Times.

Not Just another Lobster Roll

No lack of amazing restaurants here in NYC. It is the best and worst part of this crazy city. I can walk out my door and eat the best Hero Sandwich in town. It has taken a toll on the bank account and the waist line, but aren't we supposed to enjoy the moment?! 

Anyways, my friends here in the city came across this guy named Ben who makes lobster rolls in his apartment in Brooklyn. So of course, we had to try it out. On a day with terential down pour, we decided to make the trek to Brooklyn and try out no just another Lobster Roll. Below is the video on you tube about him.

www.youtube.com/watch?v=PJLrliYmqSs

Here are a couple pics to begin to explain this insane experience.

We almost drowned on the way there!

Enjoying champagne in plastic cups courtesy of Mr. Beaudin while Ben made the rolls.

Where the magic happens.

What do you do after you just ate the most amazing lobster roll ever?

go to a bar. drink. and play skeeball. obviously!